AAOMF.org created an ongoing, awareness campaign called, “Community Of Energy”, covering your local community and throughout the USA. Our goal is to help bring global awareness of Aplastic Anemia Dyskeratosis Congenita or other bone marrow failure blood diseases.
STAND-UP TO SURVIVE, means being a strong self-advocate and an empowered educated patient.
- It means taking a more progressive and active role in your medical care to ensure you or your loved one receive the best care and treatment available.
- We care about you , your health and a positive, successful outcome. You are not alone.
- STAND-UP TO SURVIVE is your program created to be with similar people with bone marrow failure blood diseases and your families will develop the understanding of medical care needed.
- Ask your medical team the newest approaches, research and up-to—date advances with bone marrow failure diseases. Be strong and hopeful. Gain the necessary skills to ensure you or your loved one receive high quality medical care.
- 1t includes a set of successful treatment tools, learning experiences, up-to—date materials and resources for you to examine and evaluate your health.
- We encourage you to engage with other patients that are surviving with this bone marrow failure blood disease. At AAOMF our goal is to help you become a strong, knowledgeable survivor for your health and your bright future.
- At AAOMF.org we encourage you to Stand up For Your Health and your goal is to discover what positive and strong patients that you are to fight successfully with your bone marrow failure blood diseases.
- Lets become very powerful and strong patients that receive high quality care. You begin by inviting other patients that have similar diseases as you have. Exchange thoughts and ideas.
- Next, you should take charge and look at what the research reported about effective self-advocacy skills.
- We encourage you to talk with hematologists, oncologists, nurse specialists, and family members of patients to get their perspective on skills needed for good health advocacy for you.
Finally AAOMF.org offers you positive energy to survive.
‘You have the power to transform all of your hardships into beauty and strength.
‘You will get into a positive head space, knowing that from there anything is possible.
‘The challenges that lie before you are there for a reason.
‘The light will allow you to learn from them and grow and you will become your finest potential.
‘All the blessings that are already yours will bring even more fulfillment and joy.
‘Your soul’s longing’s will be answered by your positive energy and your negative situations will turn beautiful.