APLASTIC ANEMIA AND OMID’S MISSION FOUNDATION
Hints for contacting your representatives influencing public policy to promote political and/or social change is a civic duty. People with rare disorders have been under the radar screen for a long time.
The one constant we all must remember is that legislators have to get re-elected and they pay close attention to the views and opinions of their constituents.
Excellent Support From Congressman Ted Deutch
We are proud to announce that Congressman Ted Deutch and Staff will offer you support and guidance, to help those going through difficulties regarding processing of disability claims through the Social Security Office.
His wonderful program can streamline the process for you and his constituents.
AAOMF.org appreciates Delray Beach Representative Lori Berman. She constantly supported our mission to bring awareness of Aplastic Anemia throughout Florida.
- Make an Appointment: When attempting to meet with a member, contact the Appointment Secretary/Scheduler. Explain your purpose and whom you represent. It is easier for
congressional staff to arrange a meeting if they know what you wish to discuss and your relationship to the area or interests represented by the member.
- Be Prompt and Patient: When it is time to meet with a member, be punctual and be patient. It is not uncommon for a Congressman or Congresswoman to be late, or to have a
meeting interrupted due to the member’s crowded schedule. If interruptions do occur, be flexible when the opportunity presents itself. Continue your meeting with a member’s
- Be Prepared: Whenever possible, bring to the meeting information and materials supporting your position. Members are required to take positions on many different issues. In
some instances, a member may lack important details about the pros and cons of a particular matter.
- 1t is therefore helpful to share with the member information and examples that demonstrate clearly the impact or benefits associated with a particular issue or piece of
- Be Political: Members of Congress want to represent the best interests of their district or state. Whenever possible, demonstrate the connection between what you are
requesting and the interests of the member’s constituency. If possible, describe for the member how you or your group can be of assistance to him/her. When it is appropriate,
remember to ask for a commitment.
- Be Responsive: Be prepared to answer questions or provide additional information in the event the member expresses interest or asks questions. Follow up the meeting with
a thank you letter that outlines the different points covered during the meeting, and send along any additional information and materials requested.
Writing to a Member of Congress
When writing a letter to your U. S. Representative or Senators, keep in mind the following rules of thumb:
- Stick to one subject.
- Be brief.
- Be factual.
- Include the bill number and title (i.e. The Rare Diseases Act, PL. 107-280, The Rare Diseases Orphan Product Development Act, PL. 107-281
- Get personal. Be courteous. Describe how the legislation impacts you. Include key information , using examples to support your position.
- Ask for Action!
- When you receive a reply, study the argument and refute logically, if applicable. If your representative or senators happen to agree with your arguments, a thank you note is
- Your personal letter, written on your personal stationery, will send a strong message: I am a constituent. I vote. The issue is very important to my family and me.